{"id":31625,"date":"2020-06-19T15:39:43","date_gmt":"2020-06-19T20:39:43","guid":{"rendered":"https:\/\/www.tmc.edu\/news\/?p=31625"},"modified":"2020-06-19T16:13:27","modified_gmt":"2020-06-19T21:13:27","slug":"racing-to-fund-the-cure-and-the-care-for-alzheimers-disease","status":"publish","type":"post","link":"https:\/\/www.tmc.edu\/news\/2020\/06\/racing-to-fund-the-cure-and-the-care-for-alzheimers-disease\/","title":{"rendered":"Racing to fund the cure and the care for Alzheimer’s disease"},"content":{"rendered":"

On June 12, a flashy, purple BMW M4 revved its powerful engine and drove up Bertner Avenue, hugging the curve as it turned into the entrance of Houston Methodist\u2019s Walter Tower.<\/p>\n

This is no ordinary vehicle. Not only does it appear to be ready for the racetrack, but a closer look reveals a collage of names amid its paint job\u2014all people affected by Alzheimer\u2019s disease.<\/p>\n

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Phil Frengs (left) and Joseph Masdeau, M.D., Ph.D., point to Jim Nantz, Jr., on the fundraising race car parked outside Houston Methodist’s Walter Tower on June 12, 2020.<\/p><\/div>\n

The driver was Phil Frengs, president and CEO of the Southern California-based company Legistics<\/a>, who is on a mission to fund Alzheimer’s research and care. For Frengs, this is deeply personal. His wife, Mimi, was diagnosed with early onset Alzheimer\u2019s in 2013. While his first priority is to take care of her, he was driven to do more for the 5.8 million Americans living with Alzheimer\u2019s<\/a>.<\/p>\n

\u201cIt occurred to me a couple years into Mimi\u2019s illness, \u2018What if we figured out a way to put the names of people on the car in exchange for a donation. Wouldn\u2019t that be a different take on this?\u2019\u201d he said. \u201cFundamentally, in racing, it\u2019s all funded by people who are willing to put their brand and their company name on the car. That\u2019s what pays all the bills. If there\u2019s value to that, there should be value to putting your loved one\u2019s name on the car.\u201d<\/p>\n

In 2017, Frengs, who had already been involved in racing as a sponsor of a vehicle in the Continental Tire Sports Car Challenge, created the Racing to End Alzheimer\u2019s Foundation<\/a>. The foundation\u2019s concept is elegantly simple: For a $250 donation, people can put the name and hometown of a friend or family member\u2014alive or deceased\u2014affected by Alzheimer\u2019s on a race car for the last race of the IMSA Michelin Pilot Challenge Series<\/a>.<\/p>\n

The names are then emblazoned on the sides, roof and hood of the race car \u201cto be a vehicle for us to honor people\u2019s loved one,\u201d Frengs said.<\/p>\n

Frengs partnered with popular sportscaster Jim Nantz, who established the Nantz National Alzheimer Center at Houston Methodist<\/a> in 2011 in honor of his father, who passed away from the disease in 2008.<\/p>\n

\u201cI think it\u2019s really important to give people the opportunity to stop and say, \u2018Wait a minute, that was my grandmother. I loved my grandmother. I want to put her name on the car. I want to take this little step toward acknowledging her life and her influence on me,\u201d said Frengs, whose wife\u2019s name is on the car. \u201cEvery one of those names has a story. Every one of those names is a real person. Every one of those names is somebody who was loved. Family members are acknowledging them and honoring them by this simple act of providing their name and hometown so that we can adorn it on our car.\u201d<\/p>\n

Funding the care and the cure<\/strong>
\nDuring the initial year, 77 names of people with Alzheimer\u2019s replaced the usual sponsoring brands on a Porsche Cayman that raced at the Laguna Seca Raceway in Salinas, California in September. The foundation raised $43,500. With Frengs\u2019 company, Legistics, underwriting all marketing and administrative costs, 100 percent of the donations go directly to two organizations: the Nantz National Alzheimer Center at Houston Methodist and UCLA Alzheimer\u2019s & Dementia Care Program<\/a>.<\/p>\n

For every $250 a donor makes in honor of a loved one, Legistics matches the contribution.<\/p>\n

\u201cWe\u2019re doing some good things for the families and the people who love somebody because we\u2019re giving them that opportunity,\u201d Frengs said. At the same time, the resulting money is going \u2026 toward funding the care and funding the cure.\u201d<\/p>\n

The idea turned out to be a hit. The following year, in 2018, the foundation decorated a BMW M4 with 125 names for the final race in Atlanta and, in 2019, 145 names appeared on an Audi RS3.<\/p>\n

Frengs and his foundation were ready for another year of fundraising, but the global COVID-19 pandemic forced racing\u2014much like all sports\u2014to come to a screeching halt.<\/p>\n

Thanks to BMW of North America, which loaned Frengs a commercial model of the exact car they use for racing, the racing enthusiast decided to get behind the wheel himself and take the racecar with the 74 names the foundation already collected for a 4,000-mile coast-to-coast road trip.<\/p>\n

\u201cThe reason we started our drive was because we felt like we were letting down our donors,\u201d Frengs said.<\/p>\n

Titled \u201cOn the Road Again: The Ultimate Tour for the Cure,\u201d the tour started at the iconic Daytona International Speedway in Daytona Beach, Florida, on June 8 and will end at the Laguna Seca Raceway.<\/p>\n

\u201cIt\u2019s our own little version of cannonball run,\u201d he said. \u201cWe thought it would be fun to bookend the trip going across the country with two of the racetracks that we race at. Laguna Seca has been such an important track to us because of the September races where we\u2019d first introduce the names and Daytona is the world center of racing.\u201d<\/p>\n

Coming to Houston<\/strong>
\nDuring his pit stop in Houston on June 12, 2020, Frengs visited the Nantz Center where he met Bruce Mowry, owner of the Houston-based company Pulse Staffing<\/a>, who made a contribution to the Racing to End Alzheimer\u2019s Foundation in honor of his father, Paul Mowry.<\/p>\n

\u201cI loved my father,\u201d said Mowry, whose father passed away from Alzheimer\u2019s at the age of 88 in 2002 after battling the disease for 10 years. \u201cIt was so bad to watch as the Alzheimer’s started to take a hold of him, watching him lose track of what he was supposed to do and having issues and wanting to wander off. It just was sad to watch that change in him.\u201d<\/p>\n

Mowry\u2019s father served in World War II and fought in the invasion of Normandy on D-Day. He continued serving as he retired and got older, mowing his neighbors\u2019 lawns and helping people wherever and whenever he could.<\/p>\n

He was, as Mowry recalled, \u201calways there doing what good people do and setting an example,\u201d but as the disease progressed, his father started to slip away.<\/p>\n

\u201cIt’s hard watching someone that you care so much about go downhill over such a long period of time,\u201d Mowry said. \u201cAlzheimer’s is somewhat forgiving, because the victim doesn’t really know what’s happening at some point. They just kind of live day-to-day or minute-to-minute and don’t really have that sense of what’s happening to them anymore, but it’s so hard on the family and caregiver.\u201d<\/p>\n

Mowry, an amateur BMW racer,\u00a0heard about Racing to End Alzheimer\u2019s through the racing community. Motivated by his desire to help the effort find a cure for the disease and further the care for patients, Mowry wanted give back in loving memory of his father.<\/p>\n

\u201cThere’s something exciting about knowing that my dad’s name is running around a race track,\u201d he said. \u201cSo many people know someone who was affected by it, so they can identify with it. That’s made it just a lot of fun for people. It’s all about maintaining that connection and not forgetting them. It means a lot to me that they’re still with us in some way.\u201d<\/p>\n

Finding a cure
\n<\/strong>Joseph Masdeau, M.D., Ph.D.<\/a>, director of the Nantz National Alzheimer Center at Houston Methodist, called Racing to End Alzheimer\u2019s mission \u201cextremely rewarding\u201d for researchers, patients and their families.<\/p>\n

\u201c[Frengs] is not only raising funds, but he\u2019s raising awareness of this disease and doing it in a very optimistic way,\u201d he said. \u201cThat\u2019s something very nice to see\u2014to see that someone is going out and showing that this is something that involves many of us and there is a future with hope for people with this disease.\u201d<\/p>\n

Since the foundation\u2019s inception, Frengs has helped Masdeau pursue cutting-edge research at the Nantz Center in an effort to find an effective treatment for the disease. Currently, medications approved by the U.S. Food and Drug Administration (FDA) only treat the symptoms, not the disease.<\/p>\n

\u201c[The disease] continues to worsen, but the only thing the medications do is change the symptoms,\u201d Masdeau said. \u201cThey don\u2019t change the underlying pathological process.\u201d<\/p>\n

The field of Alzheimer\u2019s research has been historically riddled with disappointment and desperately needs a win. Despite a spate of failed clinical trials, more advanced imaging technology developed over the past few years\u2014such as positron emission tomography (PET) imaging of amyloids, tau and inflammation\u2014is one of the main exciting sea changes in Alzheimer\u2019s research. Highly detailed imaging allows scientists to look inside the brain and understand exactly what is going on in a specific patient \u201cso that we are beginning to tailor the treatment to what is going on in the person\u2019s brain rather than generally,\u201d Masdeau said.<\/p>\n

\u201cWe\u2019re finding out that Alzheimer\u2019s is very heterogeneous,\u201d he further explained. \u201cIt behaves very differently in people. It is likely that it is different in different individuals and that\u2019s why they respond differently. That\u2019s probably why many of the clinical trials that have been performed in the past have been negative because we\u2019re mixing apples and oranges and bananas.\u201d<\/p>\n

But there is a price for progress. Federal grants from agencies, such as the National Institutes of Health (NIH), don\u2019t cover everything\u2014making philanthropic initiatives, such as Frengs\u2019 foundation, \u201cabsolutely critical for innovative research,\u201d Masdeau said.<\/p>\n

\u201cGrants from agencies, like the NIH, tend to avoid interventions or approaches that are very novel [because they\u2019re] risky in the sense because they\u2019re new and we don\u2019t have enough data to support them,\u201d Masdeau explained. \u201cYou cannot move along the lines of very novel approaches with NIH funding.\u201d<\/p>\n

This year, Frengs presented Masdeau with a check for $78,632. To date, the foundation has raised nearly $280,000.<\/p>\n

\u201cIt\u2019s going to add up over time and it\u2019s going to make a difference in each of these organizations,\u201d Frengs said. \u201cAs a businessman and entrepreneur, I\u2019m part of the group of people who thinks that we can always fix something. Just give me a problem and I\u2019ll fix it. The truth of the matter is, when it comes to Alzheimer\u2019s, there isn\u2019t much you can do. For me, this foundation\u2014this effort to raise awareness around Alzheimer\u2019s and dementia\u2014is something I can do.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

Racing to End Alzheimer’s race car stops by Houston Methodist to raise money and awareness <\/p>\n","protected":false},"author":15,"featured_media":31626,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[1],"tags":[920,4794,2593,4795,4793,4792,4525,4791,4796,4790],"yoast_head":"\nRacing to fund the cure and the care for Alzheimer's disease - TMC News<\/title>\n<meta name=\"description\" content=\"Racing to End Alzheimer's race car stops by Houston Methodist to raise money and awareness for the disease.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.tmc.edu\/news\/2020\/06\/racing-to-fund-the-cure-and-the-care-for-alzheimers-disease\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Racing to fund the cure and the care for Alzheimer's disease - 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